SDS experience and advice?

Hi @toleraceandrespect, Josh and Mary,
Thank you for your posts and further information. I appreciate that you have all had some difficult experiences - and continue to have difficulties in being able to use your SDS budget in the most helpful and flexible way possible.

Thanks Josh for posting the your Test Sheets - this could be a very helpful resource for people.

Thanks Justin for your further comments as well.

It sounds like there are some similar experiences here and I wonder if it might be helpful for us to look at how people can address issues like this and maximise the choice, control and flexibility they would like to.

I will start to collate some ideas and post further details here. However, any ideas you had for what we need to cover and include in any kind of document, just let me know.

Many thanks,

Mark
@toleranceandrespect @Josh @MaryP @justinb @DonnaMurray

Hi i am in.Scotland and totally agree with everything you say .My son ha been.in receipt of Sds for 10 years and have had this problem from the start.If only the LA would let you run it as it shoukd be i am constantly on the phone trying to get approval for things that meet his outcomes and can wzit months to even get a call back. I feel i am not being given the authority to direct the support.I honestly believe they do not actually know how legislation for SDS its extremely frustrating.

Hello Mark

Thank you for this helpful reply.
While this forum has few peolpe, there are many others we have spoken to with this same problem.

Yes we need a strategy to make a progressive positive change from certain LA for them to re-aline their policy with regards to SDS to a-line with SDS legislation,
in particular the below:

“As set out in the section on funding and flexibility, the authority should take steps to ensure that the supported person can use their direct payment in any way, provided that the support purchased via the payment is in line with the assessment and support plan, meets the supported person’s needs and is within the criminal and civil law.”

Currently my LA SDS policy is not in line with section 3 of the above or below

Social Care (Self-directed Support) (Scotland) Act 2013: statutory guidance

“The arrangements should be flexible and inclusive. Flexible – in that authorities should not seek to create or re-impose barriers to choice and control.”

Its really very simple the solution. Allow the carer or disabled person to use their SDS flexibility without barriers so long as purchases via are in line with the assessment and support plan, meets the supported person’s needs and is within the criminal and civil law.

Sure to still provide receipts and an explanation as to how and why you feel it meets the outcomes of the plan and that is enough.

  • End the obstacles and inflexibility by ending having to have every single purchase preapproved to the penny.

  • End having the LA disapproving and prohibiting the purchases of spending that the carer can clearly communicate and/or put in writing how it conplies with the outcomes on the care plan.

Currently, families all across Scotland are unable to use their SDS in accordance to SDS legislation due to barriers and inflexibility by their LA.
This needs to change.

We were delighted to get our SDS for our disabled child but then when we had to have everything preapproved to the penny for every specific activity it meant our child could not do any other activities and by the time of a review she had moved onto another activity interest. Or the cost of the preapproved activity had risen in cost and we couldnt use the SDS anyway.

Or specific sensory toys or equipment needs come along unplanned so we couldn’t use it for them.

Or we were refused other purchases even at the preapproval stage even though they would meet our childs outcomes. This shouldnt be the case with SDS legislation.

If a family wish to use it for a short break this should also be allowed without prohibition or preapproval as per

Social Care (Self-directed Support) (Scotland) Act 2013: statutory guidance

" For instance:

a product which can help to meet the supported person’s needs;

a short break; "

SDS legislation does not stipulate purchases need to be preapproved by the LA nor can the LA decline purchases if the carer can show how it meets the cared for persons outcomes.

So after all these obstacles and inflexibility we ended up with an majority underspend and unable to largely use the SDS to meet the outcomes.

A review or reassessment does not solve the issue, it mearly recirculates the obstacles and inflexibility.

Thamks Mark, yes please do collate some ideas and let us all know here.

We need some ways forward on how to address this. Who do we contact? How? Who can help with this? And what is the best way to do this? Ie a group of us together? Etc

@MarkieBoy

legal:

  • s211 local enquiry
  • group proceedings
  • or just individual Judicial Reviews establishing/clarifying the law

political (not my thing):

  • write to MPs
  • petitions
  • protests

I’ve probably missed things. I should set up a website I think

I think we’re well beyond the stage of ‘working with’ local authorities

Great points Josh. So who goes first or maybe we should mobilise a group proceeding with us here.
We need to be proactive as it can take sometime but need to start somewhere.
But will it make a difference as to being indifferent LAs? Maybe a few of us are in the same one? I am happy to continue.

I need to be careful what I say, given this is public, but I am also considering where next to take a complaint with my HSCP regarding this. We’ve just completed Stage 2 regarding flexibility of spend. I’ll keep you updated but also open to coordinated action.

Unfortunately, I did originally explore legal action regarding some of the other issues with my SDS package (there are many!), and @Josh provided some very helpful tips in this regard, but my health simply wasn’t good enough to take this forward without legal support, which is nearly impossible to get at low/no-cost.

So sorry to hear that your local authority is also not abiding by SDS legislation and hence you having to go through all this unnecessarily.

Did you mean you are now taling legal action?

Can I what is stage 2 exactly?

Hi,

I am not taking legal action, but had considered this as one of the options. Unfortunately, it’s very difficult to secure affordable legal representation to take a case forward, and my health wasn’t good enough to prepare my own case.

Sorry, I should have clarified what I meant by Stage 2. Most services have a two stage complaints process. To escalate a complaint to the Scottish Public Services Ombudsman, for example, you must have exhausted these stages.

This means that in my case, now that Stage 2 is complete, I can decide whether I want to escalate to the Ombudsman or consider something else. As this is a public forum, I need to be vague.